HomeAbout CJD***Updates***About UsHow to HelpGuest BookBlog and PhotosDonate

Recent Updates:
5/7/10

Dear friends, I hope all is well. I write this today to offer the Eric update. First off, I thank all of you for your continued support. There is a lot that this disease can and will take away from me, but the overwhelming love and caring that I feel can not be breached by its horrible brain eating teeth. I appreciate and miss all of you. I know that someday the progression will overtake me. I feel its presence, but chose to ignore its persistence. My balance has continued to get worse and I am currently taking medication to help decrease the tremors and twitching that my body is experiencing. My short term memory continues to falter and I am becoming more aware of my mental deterioration. This is one crazy journey. I feel all of the physical changes, however it is my family and friends that pick-up on my cognitive instabilities. I have become an active member of the Creutzfeldt-Jacob Disease foundation and leave an entry in their Guestbook daily. I am trying to be as proactive as I can. Because CJD is genetic in my family, I worry about my children. There are so many things that I want to give them. CJD is NOT one of those things. I look forward to seeing all of you at the fundraiser. I don’t like asking anyone for help, but then I think of my family and how I am no longer able to support them financially. It stinks, plain and simple. Thanks again. Take care and be well –ERIC!


3/29/10
Sorry I have not written in a few weeks. I wanted to let everyone know I'm doing okay, however I've been feeling a bit weaker more often and have more of a problem focusing.
I'm looking forward to stopping by and seeing many of you at the upcoming fundraiser.  I can not express the thanks and appreciation I feel in my heart. It has been hard not only to deal with this disease but to think of not having my family in our home because I am unable to do what I love is torture. For that, I will be endlessly grateful....Eric


2/24/2010

Eric has specifically asked us to pass on how much he loves and appreciates seeing your notes & messages in his GUESTBOOK.  Let's see how many notes we can send to his guestbook this week!!! Click on the GUESTBOOK tab to the left and the click "sign my guestbook"

2/21/2010
 
To all of my friends, colleagues and family,
I want you to know that I appreciate all that you have done for me over the past year.  Dealing with this illness is very difficult for me, but it is even more difficult for my family especially my children.  Your love and support over this past year has been overwhelming.  I am not going down without a fight and so far, despite some of the set backs I am winning.  How I know is that I am still here.  I want you all to know how much I miss working with you and your children.  Working within the Autism community has been the most rewarding work and I wouldn’t trade a day of it. It is difficult for me to talk to all of you because I have a hard time putting my thoughts together and coming up with things to talk about, but I remember all of you.  Thank you for welcoming me into your homes and becoming part of your family.  I am honored and humbled by it.  My thoughts are with all of you always.  Thank you again for your love and support, I don’t know what I would do without it.

Love,
Eric

 

The Starfish Story

adapted from The Star Thrower
by Loren Eiseley
1907 - 1977 
Once upon a time, there was a wise man who used to go to the ocean to do his writing. He had a habit of walking on the beach before he began his work.
 One day, as he was walking along the shore, he looked down the beach and saw a human figure moving like a dancer. He smiled to himself at the thought of someone who would dance to the day, so he walked faster to catch up.
 As he got closer, he noticed that the figure was that of a young man, and that what he was doing was not dancing at all. The young man was reaching down to the shore, picking up small objects and throwing them into the ocean.
 He came closer still and called out, "Good morning! May I ask what it is that you are doing?"
 The young man paused, looked up and replied, "Throwing starfish into the ocean."
 "I must ask, then, why are you throwing starfish into the ocean?" asked the somewhat startled wise man.
 To this the young man replied, "The sun is up and the tide is going out. If I don't throw them in, they'll die."
 Upon hearing this, the wise man commented, "But, young man, do you not realize that there are miles and miles of beach and there are starfish all along every mile? You can't possibly make a difference!"
 As if he hadn't heard, the young man bent down, picked up yet another starfish and threw it into the ocean. As it met the water, he turned, smiled and said, "I made a difference to that one!"
THANK YOU, ERIC, FOR DEDICATING YOUR LIFE TO MAKING A DIFFERENCE TO SO MANY CHILDREN WITH SPECIAL NEEDS AND THEIR FAMILIES. THANK YOU FOR HELPING TO CHANGE THE TEACHING TOOLS OF TEACHERS OF CHILDREN WITH SPECIAL NEEDS AND FOR ADDING IMAGINATION AND GOOFINESS AS ESSENTIAL TO HELPING CHILDREN TO LEARN!!!